Von Hippel-Lindau Program
The von Hippel-Lindau Program at Monroe Carell takes a team approach to treating children with this this genetic condition that predisposes them to malignant and non-malignant tumors. We coordinate treatment of both children and adults through family-centered care. We arrange for all screening, genetic testing and subspecialty care for children in families where adults have been diagnosed with VHL. We also provide ongoing support and care for children with a verified diagnosis of VHL.
Meet Your Care Team
Debra L. FriedmanMD, MS
- Division of Pediatric Hematology/Oncology, General Hematology and Oncology, Leukemia and Lymphoma, Pediatric Hematology/Oncology, Solid Organ Malignancies
Why Choose the Von Hippel-Lindau Program at Monroe Carell
- Recognized care
U.S. News & World Report has ranked Monroe Carell as one of the best pediatric cancer programs in the nation. We are one of few institutions in the nation designated as a Comprehensive Care Center by the von Hippel-Lindau Alliance. We lead efforts to develop clinical care guidelines for the Alliance.
- NCI-Designated Comprehensive Cancer Center
We partner with Vanderbilt-Ingram Cancer Center, the only National Cancer Institute-designated Comprehensive Cancer Center in Tennessee that treats pediatric and adult patients in one location. This means we are closely connected to research programs and specialists working to discover the latest breakthroughs in cancer care. Your child and family have access to treatments and therapies on the leading edge of discovery.
- Collaborative care
Our experts in pediatric cancer work with specialists in many other fields including hematology-oncology, radiation oncology, surgery, nursing, child life, social work, psychology, nutrition and physical therapy. The result is a treatment plan tailored for your child’s needs.
- Care designed with children in mind
Our connection with Monroe Carell's Palliative Care Services demonstrates our commitment to the whole child. These compassionate experts provide help and support to all children living with cancer, at every stage of the care experience. We also work with Teen Cancer America, the American Society of Clinical Oncology and the Consortium of Adolescent and Young Adult Cancer Centers (CAYACC). Together we discover and learn more to improve outcomes for teens and young adults with cancer.
- Mental and emotional health resources
We provide unique psychosocial resources to help your child manage the emotional challenges of a cancer diagnosis. These include our exclusive Behavioral Hematology Oncology Program, with licensed psychologists dedicated to working with and supporting your child's and family's mental and emotional needs.
- Post-treatment support
All patients have access to the REACH Survivorship Clinic after completing treatment. We offer a full range of follow-up care designed to meet your child’s physical, emotional and practical needs. You will receive a personalized Cancer Survivorship Care Plan that will be your child’s roadmap for future health and well-being.