Rare Lung Diseases
Finding the right care for your child with a rare lung disease can be challenging. Monroe Carell is one of the leading referral centers in the country for children with known or suspected rare lung diseases, including interstitial lung disease (ILD).
We work side-by-side with you and your child's medical providers to coordinate the best care possible for your child and family. Our team of experts provide evaluation and management for many rare lung diseases. We offer second opinions and other services and support to ensure the best respiratory health for our patients.
Once you receive a referral to our center, our program coordinator, Kathy Russell, will be your first point of contact with our team. She will obtain medical records, coordinate scheduling and help with any other administrative needs.
Conditions We Treat
We treat many rare lung diseases, including:
- Lung development disorders
- Lung diseases associated with immunodeficiency / immune dysfunction disorders
- Lung diseases associated with rheumatologic disorders
- Lymphatic disorders
- Neuroendocrine cell hyperplasia of infancy (NEHI)
Meet Your Care Team
Michael G. O'ConnorMD
- Cystic Fibrosis, Interstitial Lung Disease, Pediatric Pulmonary Medicine, Primary Ciliary Dyskinesia
Why Choose Rare Lung Disease Care at Monroe Carell
- Recognized care
U.S. News & World Report has consistently ranked Monroe Carell's pulmonology department as one of the best in the nation. Our Cystic Fibrosis, Primary Ciliary Dyskinesia and Pulmonary Hypertension programs are accredited pediatric centers.
- Exclusive care
Monroe Carell has the only specialized pediatric interstitial lung disease program in the region.
- Comprehensive care
Our team is a part of the Children's Interstitial Lung Disease Research Network (chILDRN) and is a recognized Children's Interstitial and Diffuse Lung Diseases (chILD) Clinical Center. We have the resources and tools to provide your child with a comprehensive evaluation, treatment and education.
Tests, Treatments and Services
We offer a full range of tests, treatments and services, including:
- Lung biopsy
- Six-minute walk test
- Swallow study